Wednesday, May 22, 2013


Radiation is now all set to go. They tell you they will be making this mask to hold your head still while they do the radiation and I thought oh no big deal. Ha Ha After they made the mask, did a CT scan asked questions, they took it off, sat me up and asked how that was. I said it was like something out of a horror movie. How does it feel ? Like someone is choking you while they have your head nailed to a table. Luckily I'm the kind of person that can talk my self out of a fear if I have to. here's a video that shows what it will be like. the only difference in my mask is I don't have the back piece since they have a form fitting head rest and I don't have the front face strips under the mask. I'm not looking forward to all the driving and spending our summer going back and forth to concord. The Cancer Center is great, everyone is very nice and people treat you like they are your best friend or mom. The lady asked me what I'd like to be called when I came in for radiation. I said well Lisa ? Then my silly side kicked in and I said better yet, how about Your Majesty lol She said Oh we can call you that your Majesty. lol They said I could keep the mask when I'm done, ha ! I'll only be keeping it because it's the same stuff used for jewelry tools. I hate masks and faces and no way I would want that one otherwise. They said my chance of going blind is around 5-10% and since I never wo the lottery, I won't worry about that ! Knock on wood ! Might give me short term memory problems, puzzle solving troubles and forehead burn and hair loss. Maybe that will burn out the itching ? I hope ! Anyway, I start on June 11th unless it gets in the way of school ending ceremonies. If it conflicts with that, we'll start it the next week . I was going to bring in this for my CT scan but my printer was out of ink and wouldn't cooperate with me. I'll let you all know how it goes and if bald is beautiful ! Blick ! but if everyone else can do it, so can I.


  1. Lisa - I'm proud of you. You are so positive, your Majesty! Maybe I will have to go through that too for my thyroid nodules. At least now I will have an idea of what's involved.

  2. Lisa - I much prefer this cat scan that you have shown above! :) He's a cute kitten.
    I know you can get through this - it will be hard, but take one day at a time and keep your goals in sight. I will be here for you if you want to cry or just come over for a change of scenery. Love you, your Majesty! :)

  3. Wait, burn out the itch? Do you have an itch from surgery? I have what it seems is going to be a lifelong, constant neuropathic itch since my craniotomy in 2010, and keep it at bay enough to be able to stand it with medication. My surgeon said he'd never seen it before, so if it's an experience you have too I'm sure curious. You will be in my prayers as you go through your radiation - I don't suppose they'd let you put just a tiny bit of a tiara on that mask, would they? I hope your sense of humor helps you through when it can, and love helps you through if things get yucky enough that laughing gets harder.
    Lyn Betz

  4. How often and for how long do you have to go through the radiation?

  5. Oh no Lyn, you still itch ? Yes, it's from the surgery. They gave me meds to make it stop but the meds didn't work. They refused to up them because the radiation is starting soon and they didn't want it to mess with that. I spend many morning in tears wanting to rip my head off.
    Joe, I will have 28 days of radiation. Monday through Friday with the weekend to rest. I should be done by the end of July unless they decide it needs to go longer.